These last few weeks have been extremely busy! Alexander has had several doctor appointments, and we have been busy driving back and forth between them! He had his two year check-up with his Pediatrician! She seems to think he is doing very well, and it was so nice to get a good report from her! She did suggest that we start seeing a Physical Med & Rehab doctor to help us make sure we are getting everything Alexander needs as far as bracing and equipment. We will see her in May! We also had an appointment with his Neurologist at Riley. I told Alexander we were going to see Dr. Walsh in the car, and he replied... "Dr. Shhhhh" it was so adorable. Dr. Shhhh also, said Alexander seems to be doing very well! He started Alexander on a medicine that has shown some help in children with SMA gain some strength. It is not a trial medication, but during the clinical trials it went both ways. It helped some, and didn't affect others. He said we will try it for 6 months just to see if it helps Alexander at all! So keep your fingers crossed!! We also, had to take him to get measured for new AFOs (ankle/foot braces). He has had his since August, and definitely needs bigger ones. Hopefully we will get those in the next couple of weeks. Alexander also went to the sleep clinic, and we were very relieved that his sleep apnea was so mild, and they just want to do another sleep study in about a year. I think that is about it on the doctors we saw! So overall it was finally good reports across the board. His weight, which is always a concern, had been doing very well. Then, last week his nutritionist came and he had grown another 1/2 an inch and lost 7 ounces. It doesn't seem like a large loss, but for him it is huge. They are putting him on Kid Essentials 1.5 cal, which has about 115 more calories in each bottle. At 3 a day, he will be getting about 345 more calories a day. Hopefully this boost in calories will help get him back on track and prevent Alexander from needing a G-Tube! His therapists decided they though it would be good to start Developmental Therapy, and we will begin seeing her next week. She will be able to help us prepare Alexander for Preschool and work on anything else that we need. We have heard great things about her, and can not wait to meet her. Overall he is doing pretty well! On a fun note, he is loving the nice weather. He loves riding in his stroller outside, and swinging in his swing. He also, loves playing out in daddy's garage while daddy works on the things. It has also given him more time to practice his wheelchair, and he is getting so good at driving it! I think we are going to start practicing on turning... so watch out! These are just a few pictures from the last few weeks! Hope everyone is doing very well, and enjoying the spring weather!Alexander in his stroller waiting for his Neurologist!
Alexander in his stander enjoying the weather!
Alexander and Hailey sleeping... they just love each other!
