Standing!

I am so happy and excited to tell EVERYONE that.... Alexander stood for the very first time on Thursday, May 20! It was for 2 to 3 minutes during his Physical and Occupational Therapy. Then, on Monday he did it again several times! He has to have his bracing on, and does best slightly propped up against the couch, but he is STANDING! We were told from the very beginning of his diagnosis of SMA that standing would NOT be possible! He proved everyone wrong!!! We could not be more proud of our sweet boy. I know that many people know the excitement that these milestones create in a family, but when you are told it will never happen and it does the excitement and joy can not be described!

Alexander, we are all soooo proud of you and love you very much! This just proves that you can do anything and everything you set your mind too! Some things may take longer than others, but with hard work you can do it! We love you Pumpkin Pie!

Two Years Old!!

I have been a little behind on posting these pictures, but I wanted to share

Alexander's Two Year Old pictures!

SMA Walk N Roll

A couple weekends ago, we had the wonderful opportunity to attend our first SMA fundraiser in Cincinnati, OH. I honestly had no idea what to expect, but I was very excited to go. Sean, me, Alexander, Julie (Sean's mom/Mimi), Cheryl (Sean's sister), and Andy (Cheryl's boyfriend) all got to make the trip down to the event. It ended up being an incredible weekend! We drove down Friday night so we could be ready bright an early for the walk. The walk was amazing! We were there for maybe 15 minutes getting Alexander in his wheelchair, and right away one of the heads of the walk recognized us as a new family and introduced himself. They took a ton of pictures of Alexander and all the families were super nice. We even met a few families who would also be at the conference in California this summer! They had a raffle, information on SMA, and some fun kid's games! Alexander even won one of the raffle prizes (a two night, three day stay at The Great Wolf Lodge.) It was a very uplifting event! Just being around other people who knew what we were going through was a great feeling. Plus, all the kids with SMA were so amazing! It just felt like another family that we fit into perfectly!
After the walk, we went to the Newport Aquarium. Alexander absolutely loved it! He repeatedly said fish, fish, fish! He got to see so many cool fish, toads, alligators, and so much more! He even got to pet a crab and a shark. He thought that was the coolest thing ever. He would pet them and say more, more, more. He did not want to leave! After we left the aquarium, we went back to our hotel for a little bit of rest! Then, we decided to go to Dave and Buster's! We ate dinner and played a ton of games! The weekend was amazing and so much FUN!

Alexander playing on the car ride to Cincinnati!

Sean, Alexander, and Cheryl at dinner Friday night!

Alexander in his wheelchair at the SMA walk!

Alexander asleep on the ride to the aquarium!

Sean and Alexander looking at the aquarium!

Andy helping Alexander pet a shark!

Sean and Alexander driving a car at Dave and Busters!