California SMA Conference

Sean, myself, Alexander, my Mom, and Sean's Mom all traveled to Santa Clara, CA for a Families of SMA Conference at the end of June. Alexander and I got to go on our first flight together, and I was definitely more nervous than he was! He absolutely loved flying, he just kept saying "weee" the whole time we took off, and wanted more when we were up in the air. He was a great little flier! We were all so excited, but at the same time didn't know exactly what to expect since it was our first conference. When we got out to California and got to our hotel, we immediately felt welcomed. It was so exciting to see all the other SMA kids there, and we knew that Alexander was going to have a great time. They had many workshops for us to choose from (OT, PT, fund-raising, etc.) , a reception dinner, and a kids carnival throughout the 3 days. I have to say that meeting all the other parents and kids was one of the most meaningful parts of the conference. We were actually in a place where we didn't feel alone because we knew that all the other families were going through the same things. We learned a lot of helpful hints from the other parent's experiences, and were able to share some of ours with them. We also learned a ton about the research that Families of SMA sponsors, and we are looking forward to setting up a fundraiser to help support finding a cure! This conference was an incredible experience, and was an incredible opportunity for all of us. Alexander had a blast every single day we were there. He loved being able to drive his wheelchair every where and loved seeing all of the other kids in their wheelchairs! Alexander had a blast at the carnival because every one was so accommodating and fun! So, obviously we had a wonderful time and can not wait to attend next year's conference!

Our views from the hotel!


Nana helping Alexander drink some Cali OJ... he loved it!

All of us at the dinner reception!

Alexander in a Standing Dani!

Alexander driving to the carnival!

Alexander being goofy at the carnival!

Alexander wheelchair bowling!